Mason’s Awareness & Support for Osteopetrosis Network

Part of the mission of the Mason Shaffer Foundation is to create a support network for families of children with Malignant Infantile Osteopetrosis (MIOP) including:

Links for Physical and Occupational Therapy for patients with Osteopetrosis

Improve and update clinical information on Osteopetrosis (MIOP) made available to the public via the Foundation’s website at www.MasonShafferFoundation.org

Links to resources for updated clinical information

Increasing the general awareness of the disease

Social networks to allow families to share their success stories, questions on MIOP and stem cell transplant, and personal experiences

Information on Doctors and Transplant Units

 

 

 

 

 

 

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The Mason Shaffer Foundation is a 501(c)3 non-profit organization. All donations are tax-deductible.